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My Story of Lyme Disease

May 22, 2013

my story of lyme disease, deer tick, image of deer tick, tick on leaf, headaches and lyme disease, acupuncture for lyme disease, acupuncture, symptoms of lyme diseaseThis is my story of Lyme Disease. It was June 2007, I was on my way to New York City for a doula training. Arrangements and “spreadsheets” for the kids’ schedules were taken care of and I had three days to immerse myself in something I love. I had dinner plans to visit friends in NYC and was happy to be staying with my brother and sister-in-law.

The first morning I woke up stiff and creaky and moved myself through some yoga poses and stretches to relieve the pulling. I just felt “off” and tight with underlying soreness through the day, as if I may have been about to get sick.

The second night, I woke up in the middle of the with painful aching all over. What I’d put off as stiffness from an unfamiliar bed didn’t fit with this growing pain. Yet, I stretched in the predawn hours and again after halting dozes. I got through another day, still enjoying the training but increasingly distracted from my achiness. I met a friend for dinner, excited to see her I didn’t want to cancel, but I was struggling.

By the third night, barely sleeping, tossing in pain and sweat and chills, I really knew something was wrong. That day a woman in the training did reiki on me, another massaged my back, the trainer (my dear friend Debra Pascali Bonaro) suggested I lay down on the bed in the room adjacent to the training where I could listen from a horizontal position.

I vividly remember the emotions I had sitting in Penn Station alone, waiting for my train. I felt grateful that at the last minute, I’d decided to take the train instead of driving. I couldn’t believe how dramatically different I felt with each passing day. I hunched on a bench rocking myself and trying anything to distract myself from the pain. The train ride to New London where my Dad met me was excruciating; I curled up and tried to be still, tried to rest. I don’t know how I drove the last leg of the trip to get myself home.